Youth Journal On Rare Diseases
Amplifying Voice, Inspiring Change
About Us
The Youth Journal on Rare Disease is a student-led platform dedicated to advancing research and raising awareness of rare diseases. We highlight cutting-edge research, share compelling stories, and provide deep insights to inspire understanding and action for those affected.
Our Work
Journals
Youth Journal on Rare Diseases Volume 1
Our first volume explores the journey of rare diseases through four insightful articles. We cover historical milestones, current challenges and innovations, future prospects in treatment and technology, and inspiring patient stories. This comprehensive overview offers hope and valuable insights for those affected by rare diseases.
Youth Journal on Rare Diseases Volume 2
In our second volume, we delve into the experiences of rare disease patients and researchers through in-depth interviews. We provide a global look at the lives of individuals affected by rare diseases, spanning various countries and cultures while shedding light on their conditions. This volume offers fresh insights and perspectives that challenge how society views and addresses these issues today.
Brochures
Rare Disease Care and Support Brochure
Our online brochure is a great resource for rare disease patients to find support in our community in Vancouver. Some topics covered include when and who to seek support, how to live with rare conditions, and the support system around Vancouver to help these people.
